Why do I feel so bad?

In May 2013, I faced dialysis for a second time, but the changes to my life from renal (kidney) failure began in 2000. So the initial posts will express my experiences as a new kidney patient, cover the transplant briefly, and move on to the dialysis treatments I have undergone since May 2013.

APRIL 2002
 
 
I WON two tickets to see Cirque du Soleil this morning. WON THEM. The show is tonight, and I can’t wait! I won them on the radio on the way to work. It’s Friday. Woo-hoo!

Okay. I don’t feel so hot. I REALLY don’t feel well. Nausea, bloating, vomiting. I’m driving the 23 miles home.

Great, I got sick twice on the side of the road on the way home. I tried to give away the tickets, but no one could go on such short notice. (Yes, I think of these things.) I called Jeff (my husband), and he asked if I wanted him to come home. When I answered yes, he knew something was wrong. I’m an independent woman. I always have been. I can handle whatever you throw at me. But I was weak. And sick. And I needed someone nearby. Fortunately Jeff is a husband who knows how to keep his distance but check on me and let me know he’s not far off if I need him.

Jeff came home and found me in bed. By evening I asked him to take me to urgent care. I was dehydrated, and I could feel it. So then he was certain something was wrong. I don’t mind doctors, but needles and IVs terrify me. After a bag of fluid, I felt better and went home. Jeff called my mom, but I didn’t know it. Truth is that he was scared for me. And he knew I was sick and concerned. I have never been this sick.

Monday, I went to see a new doctor because of insurance changes. He had not seen me before and I had not transferred my records, so he did a full battery of blood tests. I had a virus that could be treated with medicines, but thankfully he was attentive to my labs. Dr. Hart referred me to a kidney specialist (nephrologist) because my creatine level was high. Mine was at 1.5. I remember the nephrologist saying with a chuckle, “LabCorp says 1 – 1.5 is normal, but I say it’s not, and I’m the doctor!” He wanted to do a biopsy. But it was nearing summer, and Jeff and I had plans. So I put off the biopsy. Twice. Almost too long. A reading of 1.5 means kidneys are functioning at 50 percent. But medication can help.

Check back Tuesday to see how I found out I was in kidney failure.

Please make comments, ask questions, and share your experience. ~Beth

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About dialysisgal

When I joined the 450,000 Americans on dialysis, I wondered what "normal" would be. Would people stare at my access and ask what was wrong? In this blog, I hope to save other patients and their families from the difficulties I have faced. I want to share my experiences, what I learned, had to ask and was shocked to find. I am not a medical professional, but I hope we can have a conversation to help you better understand what you or someone you love with chronic kidney disease (CKD) might expect while living with dialysis.
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