Why do I feel so bad?

In May 2013, I faced dialysis for a second time, but the changes to my life from renal (kidney) failure began in 2000. So the initial posts will express my experiences as a new kidney patient, cover the transplant briefly, and move on to the dialysis treatments I have undergone since May 2013.

APRIL 2002
I WON two tickets to see Cirque du Soleil this morning. WON THEM. The show is tonight, and I can’t wait! I won them on the radio on the way to work. It’s Friday. Woo-hoo!

Okay. I don’t feel so hot. I REALLY don’t feel well. Nausea, bloating, vomiting. I’m driving the 23 miles home.

Great, I got sick twice on the side of the road on the way home. I tried to give away the tickets, but no one could go on such short notice. (Yes, I think of these things.) I called Jeff (my husband), and he asked if I wanted him to come home. When I answered yes, he knew something was wrong. I’m an independent woman. I always have been. I can handle whatever you throw at me. But I was weak. And sick. And I needed someone nearby. Fortunately Jeff is a husband who knows how to keep his distance but check on me and let me know he’s not far off if I need him.

Jeff came home and found me in bed. By evening I asked him to take me to urgent care. I was dehydrated, and I could feel it. So then he was certain something was wrong. I don’t mind doctors, but needles and IVs terrify me. After a bag of fluid, I felt better and went home. Jeff called my mom, but I didn’t know it. Truth is that he was scared for me. And he knew I was sick and concerned. I have never been this sick.

Monday, I went to see a new doctor because of insurance changes. He had not seen me before and I had not transferred my records, so he did a full battery of blood tests. I had a virus that could be treated with medicines, but thankfully he was attentive to my labs. Dr. Hart referred me to a kidney specialist (nephrologist) because my creatine level was high. Mine was at 1.5. I remember the nephrologist saying with a chuckle, “LabCorp says 1 – 1.5 is normal, but I say it’s not, and I’m the doctor!” He wanted to do a biopsy. But it was nearing summer, and Jeff and I had plans. So I put off the biopsy. Twice. Almost too long. A reading of 1.5 means kidneys are functioning at 50 percent. But medication can help.

Check back Tuesday to see how I found out I was in kidney failure.

Please make comments, ask questions, and share your experience. ~Beth


About dialysisgal

When I joined the 450,000 Americans on dialysis, I wondered what "normal" would be. Would people stare at my access and ask what was wrong? In this blog, I hope to save other patients and their families from the difficulties I have faced. I want to share my experiences, what I learned, had to ask and was shocked to find. I am not a medical professional, but I hope we can have a conversation to help you better understand what you or someone you love with chronic kidney disease (CKD) might expect while living with dialysis.
This entry was posted in dialysis, kidney disease, kidney failure, nephritis, renal failure and tagged , , , , . Bookmark the permalink.

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